Saturday, January 12, 2013

Tonight, Just Pray.

Back when all the possible republican candidates were hashing it out for the coveted role of "THE republican candidate", I came across a story while doing my typical research and reading on abortion and the like. The article was called, Rick Santorum: Meet My Son. The article was written by writer Emily Rapp. If you remember, Rick Santorum is a passionate pro-lifer, despite the fact that his own wife had to have an induction to terminate a pregnancy to save her own life back in 1996. Emily's article describes the gut wrenching process of having to watch her son, Ronan, die a slow and awful death due to Tay-Sachs. While pregnant, Emily underwent prenatal testing, but the tests came back negative for Tay-Sachs. In the incredibly honest article, Emily says that had she known that her son had Tay-Sachs, she would have terminated her pregnancy. Not because she only wanted a "perfect" child, but because she was already so in love with her unborn child that the idea of allowing him or her to suffer was unbearable. You can read more about Tay-Sachs here. Right now, Ronan is blind, paralyzed, and growing less responsive by the day.

(Please, go and read the article. But have a box of tissues handy.)

The point of that introduction was to say this:

Ronan is in his final stages of life, as we speak. They now have him on IV fluids for hydration and comfort care, but right now, he is at the end of the line.

I found out that Ronan's condition had deteriorated a couple of days ago via Emily's facebook page. She posted a status that said:

"Thanks for all the positive thoughts, folks, and for thinking of Ronan. I really appreciate it. Rones is taking fluids and meds through an ng tube (through his nose) for comfort care and hydration because he can no longer swallow and had a day of extreme respiratory distress. It was a terrible decision to make but felt like the right one. He is able to taste small bits of food. His body is slowing down. He is never without people who love him. xo"

As a mother, I can't imagine what Emily is going through. Having to watch your child suffer and deteriorate over a period of a few years would be unbearable, but she's done it, because her first priority is Ronan. I have no idea if she is relieved, for his sake, that they are at the end of the line, or if this is the worst time of her life..or both. But I think it's safe to say that regardless, she needs all the prayers she can get. And Ronan certainly needs all the prayers that he can get. Prayers for a comfortable passing for Ronan, prayers for healing for Emily, prayers for strength for the whole family.

For a moment tonight, please push aside your thoughts on abortion...whether or not you think that Emily is wrong (or not) for wishing she had known about Ronan's condition so that she could have ended his suffering. Tonight, just pray for them.




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